The German national registry for primary immunodeficiencies (PID)

The German national registry for primary immunodeficiencies (PID).

In 2009, a federally funded clinical and research consortium (PID-NET, http://www.pid-net.org) established the first national registry for primary immunodeficiencies (PID) in Germany. The registry contains clinical and genetic information on PID patients and is set up within the framework of the existing European Database for Primary Immunodeficiencies, run by the European Society for Primary I...

Primary Immunodeficiencies (PID): driving diagnosis for optimal care in Europe

Primary Immunodeficiencies (PID) are defects of the immune system that cause increased susceptibility to infections that are chronic, persistent, recurring, debilitating, and often fatal. There are more than 150 PID diseases, which affect more than 10 million people worldwide. PID are often manageable, if properly evaluated and treated. However, awareness of these diseases is low amongst both p...

The primary immunodeficiencies.

Primary immunodeficiencies

Primary immunodeficiencies (PID) are inherited disorders of immune system function [1,2] characterised by absent or low response to infectious agents and a high prevalence of autoimmune manifestations and lymphoproliferative diseases. More than 120 PID in which a molecular defect causes the disease have been identified. The IUIS/WHO Experts Committee published a classification of all PID known ...

Iranian Joint Registry(Iranian National Hip and Knee Arthroplasty Registry)

   Periodic evaluation and monitoring the health and economic outcome of joint replacement surgery is a common and popular process under the territory of joint registries in many countries. In this article we introduce the methodology used for the foundation of the National Iranian Joint Registry (IJR) with a joint collaboration of the Social Security Organization (SSO) and academic research de...